Understanding Gastroparesis: Raising Awareness During Gastroparesis Awareness Month

August marks Gastroparesis Awareness Month, a crucial time to shed light on a condition that often goes unnoticed despite its significant impact on those who live with it. Gastroparesis, derived from the Greek words gastro (stomach) and paresis (partial paralysis), refers to a chronic digestive disorder where the stomach’s ability to empty its contents is slowed down or stopped, even though there is no blockage. 

This condition can lead to severe discomfort and can significantly impair the quality of life.

What is Gastroparesis?

Gastroparesis is a condition that disrupts the normal motility of the stomach muscles. Under normal circumstances, strong muscular contractions propel food through the digestive tract. However, in individuals with gastroparesis, these contractions are weakened or dysfunctional, causing food to remain in the stomach longer than it should. This delay in gastric emptying can lead to a host of symptoms, including:

Nausea and vomiting: Patients often experience persistent nausea, leading to frequent vomiting, which can be debilitating.

Bloating and fullness: Even after consuming a small amount of food, patients may feel uncomfortably full or bloated.

Abdominal pain: The sensation of pain or discomfort in the stomach is common, contributing to the overall distress.

Malnutrition: Due to difficulties in eating and retaining nutrients, individuals with gastroparesis are at risk of malnutrition and unintended weight loss.

Fluctuating blood sugar levels: Particularly in those with diabetes, delayed gastric emptying can cause erratic blood sugar levels, complicating management.

The Importance of Awareness

Gastroparesis Awareness Month is an opportunity to educate the public and healthcare professionals about this challenging condition. Despite its prevalence, gastroparesis is often misunderstood or misdiagnosed, leading to delays in treatment and unnecessary suffering.

One of the key challenges faced by those with gastroparesis is the lack of a cure. Current treatments focus primarily on managing symptoms and improving the quality of life. These may include dietary modifications, medications to stimulate stomach motility, and in severe cases, surgical interventions.

Supporting Those with Gastroparesis

Living with gastroparesis can be isolating, as the symptoms often interfere with daily activities and social interactions. Raising awareness can foster greater understanding and support for those affected. Here are some ways to contribute:

Educate Yourself and Others: Learn about the condition and share this knowledge with friends, family, and your community. Understanding the challenges faced by those with gastroparesis can lead to more compassionate and supportive environments.

Advocate for Better Treatment Options: Support research and advocacy efforts aimed at finding more effective treatments and ultimately a cure. Joining patient advocacy groups or supporting relevant charities can make a difference.

Encourage Early Diagnosis: Gastroparesis can be difficult to diagnose due to its overlapping symptoms with other gastrointestinal disorders. Encouraging people to seek medical advice for persistent digestive issues can lead to earlier diagnosis and better management.

Support Affected Individuals: Whether it’s offering a listening ear, helping with meal preparation, or being flexible with social plans, small gestures of support can greatly improve the day-to-day lives of those living with gastroparesis.

Gastroparesis Awareness Month is not just about understanding a medical condition; it’s about recognising the daily battles faced by those living with it. By increasing awareness and fostering a supportive community, we can help improve the lives of individuals with gastroparesis and contribute to the ongoing search for better treatments and, hopefully, a cure.

Let’s use this month to make a difference by spreading knowledge, offering support, and advocating for those whose voices are often unheard. Together, we can create a world where living with gastroparesis is more manageable and less isolating.

https://aboutgastroparesis.org/living-with-gastroparesis/gastroparesis-awareness-month/#:~:text=August%20is%20Gastroparesis%20Awareness%20Month.

There's a friend of this blog Ellie Dyson who suffers from gastroparesis and who is appealing for help to raise funds for an operation that, it is hoped, can help her. Please donate what you can. 

https://www.gofundme.com/f/gastric-pacemaker-to-help-me-live-my-life

British Woman Launches Fundraiser for Life-Changing Treatment

Eleanor (Ellie) Dyson, a woman suffering from Gastroparesis, has turned to crowdfunding to raise £20,000 for a life-changing gastric pacemaker not available through the NHS. 

Gastroparesis, a chronic illness causing severe nausea and vomiting, has left Eleanor reliant on tube feeding and frequent hospitalisations.

Frustrated by the lack of effective treatment options within the NHS, Eleanor initiated a GoFundMe campaign, which has so far garnered £12,008. "This pacemaker could drastically improve my quality of life," she shared.

Despite facing significant health challenges for over a decade, Eleanor remains hopeful and determined to reach her fundraising goal. Supporters old and new can contribute to her campaign here.

Contact: Eleanor Dyson, GoFundMe Campaign https://www.gofundme.com/f/gastric-pacemaker-to-help-me-live-my-life?attribution_id=undefined&utm_campaign=fp_sharesheet&utm_medium=customer&utm_source=website_widget

Understanding Supplements for Gastroparesis: A Guide for Patients

Gastroparesis is a condition that affects the normal spontaneous movement of the muscles (motility) in the stomach. 

It's a chronic disorder where the stomach takes too long to empty its contents. This can lead to a range of symptoms, including nausea, vomiting, feeling full quickly, and abdominal pain. 

Managing gastroparesis often requires a multifaceted approach, including dietary changes, medications, and in some cases, supplements.

 Here’s a guide to understanding the role of supplements in managing gastroparesis.

The Role of Supplements in Gastroparesis

For those suffering from gastroparesis, maintaining proper nutrition can be challenging due to impaired stomach motility. Supplements can play a crucial role in ensuring you receive the necessary nutrients that might be difficult to obtain from diet alone. However, it’s essential to approach supplement use carefully and under medical supervision.

Key Supplements for Gastroparesis Patients

Multivitamins:

Why: People with gastroparesis often struggle with nutrient absorption and may have dietary restrictions that make it hard to get all essential vitamins and minerals.

What to look for: Choose a multivitamin that is easily digestible. Liquid or chewable forms may be preferable as they are easier on the stomach.

Vitamin B12:

Why: Gastroparesis can lead to reduced absorption of Vitamin B12, essential for nerve function and red blood cell production.

What to look for: Sublingual B12 (which dissolves under the tongue) or B12 injections can be more effective as they bypass the gastrointestinal tract.

Iron:

Why: Iron deficiency and anaemia are common in gastroparesis patients due to poor dietary intake and absorption.

What to look for: Liquid iron supplements can be gentler on the stomach. Pairing iron with Vitamin C can enhance absorption.

Magnesium:

Why: Magnesium helps with muscle function and may aid in reducing symptoms like constipation.

What to look for: Magnesium citrate or magnesium glycinate are usually better tolerated forms.

Probiotics:

Why: These can help maintain gut health and potentially improve digestive function.

What to look for: Select a probiotic that has strains beneficial for gut motility, such as Lactobacillus and Bifidobacterium.

Ginger:

Why: Known for its anti-nausea properties, ginger can help manage symptoms of nausea and vomiting.

What to look for: Ginger supplements or ginger tea can be effective, but always check for tolerance as some people might find it irritating.

Important Considerations

Consult with Your Doctor: Always discuss with your healthcare provider before starting any new supplement to ensure it’s appropriate for your condition and won’t interact with any medications you’re taking.

Start Slow: Begin with low doses to assess tolerance and gradually increase as needed.

Monitor Symptoms: Keep track of any changes in your symptoms and report these to your healthcare provider. Some supplements might exacerbate symptoms like bloating or nausea.

Focus on Form: Liquid, chewable, or sublingual supplements are generally more easily absorbed and tolerated in gastroparesis patients compared to pills or capsules.

Dietary Tips to Enhance Supplement Effectiveness

Small, Frequent Meals: Eating smaller meals more frequently can help manage gastroparesis symptoms and improve nutrient absorption.

Low-Fibre Diet: High-fibre foods can slow stomach emptying. Opt for low-fibre options that are easier to digest.

Stay Hydrated: Adequate fluid intake is crucial, but avoid drinking large amounts during meals to prevent feeling overly full.

Food Supplements: To meet your nutritional needs, it may be sensible to supplement your diet with a commercially available liquid nutrient preparation that is low in fibre, like Ensure, Boost, or even baby foods. Foods put in a blender may also be used as a liquid nutrient source. Any food can be put in a blender.

Conclusion

Managing gastroparesis is challenging, but with the right approach, including the thoughtful use of supplements, you can better manage your symptoms and maintain nutritional health. Always prioritise working closely with your healthcare team to tailor a supplement regimen that best suits your needs. Remember, what works for one person may not work for another, so personalised care is key.

Stay informed, stay proactive, and don’t hesitate to seek support from healthcare professionals and support groups who understand the unique challenges of living with gastroparesis.

These links might also provide further hints and tips:-

https://rb.gy/6iljwt

https://www.niddk.nih.gov/health-information/digestive-diseases/gastroparesis/treatment

https://www.mayoclinic.org/diseases-conditions/gastroparesis/symptoms-causes/syc-20355787#:~:text=Although%20there's%20no%20cure%20for,medication%2C%20can%20offer%20some%20relief.

https://www.webmd.com/vitamins/condition-2271/gastroparesis

Supporting Loved Ones with Gastroparesis: A Guide to Compassionate Care

Living with gastroparesis can be challenging, not just for the person directly affected but also for their family and friends. It's a condition that disrupts the normal movement of muscles in the stomach, making it difficult to digest food properly. 

As a result, those with gastroparesis often experience symptoms such as nausea, vomiting, bloating, and abdominal pain, which can significantly impact their quality of life. If someone close to you is living with gastroparesis, there are several ways you can offer support and help them navigate through this difficult time.

Educate Yourself: Take the time to learn about gastroparesis. Understanding the condition, its symptoms, and its treatment options can help you provide better support to your loved one. There are plenty of reliable resources available online, as well as support groups where you can connect with others who are also supporting someone with gastroparesis.

Be Empathetic: Living with a chronic illness like gastroparesis can be emotionally and physically draining. Be there for your loved one and offer a listening ear without judgment. Let them know that you understand that their symptoms are real and that you're there to support them through the ups and downs.

Offer Practical Help: Gastroparesis can make everyday tasks challenging. Offer practical assistance such as preparing meals that are easy to digest, running errands, or helping with household chores. Even small gestures can make a big difference in easing the burden on your loved one.

Be Flexible and Understanding: Gastroparesis symptoms can be unpredictable, and your loved one may need to cancel plans or change them at the last minute due to flare-ups. Be understanding and flexible, and let them know that it's okay to prioritize their health and well-being.

Encourage Self-Care: Encourage your loved one to prioritise self-care and listen to their body. This may include getting enough rest, staying hydrated, and avoiding trigger foods. Offer to accompany them on gentle walks or other activities that they enjoy and that won't exacerbate their symptoms.

Advocate for Them: Help your loved one advocate for themselves by accompanying them to medical appointments, taking notes, and asking questions on their behalf. Sometimes, having a supportive advocate can make all the difference in ensuring that they receive the care and support they need.

Stay Positive and Offer Hope: Living with gastroparesis can feel overwhelming at times, but staying positive and offering hope can make a world of difference. Remind your loved one that they're not alone in this journey and that there are treatment options available that can help manage their symptoms and improve their quality of life.

In conclusion, supporting a family member or friend with gastroparesis requires patience, empathy, and understanding. By educating yourself about the condition, offering practical help, and being a source of emotional support, you can make a meaningful difference in their lives. Together, we can help our loved ones with gastroparesis navigate through the challenges they face and live their lives to the fullest.

We hope these resources will be of help to you:-

https://www.mayoclinic.org/diseases-conditions/gastroparesis/symptoms-causes/syc-20355787

https://www.niddk.nih.gov/health-information/digestive-diseases/gastroparesis/symptoms-causes

https://badgut.org/information-centre/a-z-digestive-topics/gastroparesis

https://gutscharity.org.uk/advice-and-information/conditions/gastroparesis

https://rarediseases.org/rare-diseases/gastroparesis

https://familydoctor.org/condition/gastroparesis

https://www.enterramedical.com/?gad_source=1&gclid=CjwKCAjw88yxBhBWEiwA7cm6pZf1QglnUmgNOm7FruXqjd77lqAZpeWsqGTyTw1fJUimaOJ0S8I6CRoCRd0QAvD_BwE

https://gut.bmj.com/content/68/12/2238

Understanding Gastroparesis: Symptoms, Causes, and Treatment Options. And how you can help

Imagine not being able to eat any food at all due to a devastating digestive condition?

This is the problem faced by many people who suffer from a poorly understood condition known as Gastroparesis.

What is Gastroparesis? It is a gastrointestinal disorder characterised by delayed emptying of the stomach contents into the small intestine without any apparent obstruction. This condition can significantly impact an individual's quality of life, causing symptoms such as nausea, vomiting, bloating, and abdominal pain. Understanding the causes and available treatment options for gastroparesis is crucial for effectively managing this condition.

Symptoms of Gastroparesis:

Gastroparesis presents with a range of symptoms, which may vary in severity from person to person. Common symptoms include:

Nausea and vomiting: Individuals with gastroparesis often experience persistent nausea and may vomit undigested food, especially after meals.

Bloating: The delayed emptying of the stomach can lead to a sensation of fullness and bloating, even after consuming small amounts of food.

Abdominal pain or discomfort: Some individuals may experience abdominal pain or discomfort, which can be intermittent or persistent.

Heartburn or acid reflux: Gastroparesis can exacerbate symptoms of gastroesophageal reflux disease (GERD), leading to heartburn or acid reflux.

Changes in blood sugar levels: Gastroparesis can interfere with the normal absorption of nutrients, leading to fluctuations in blood sugar levels, particularly in individuals with diabetes.

Causes of Gastroparesis:

Several factors can contribute to the development of gastroparesis, including:

Diabetes: Diabetic gastroparesis is the most common form of the condition and is thought to result from damage to the nerves that control stomach contractions due to high blood sugar levels over time.

Post-surgical complications: Gastroparesis can occur as a complication of certain abdominal surgeries, particularly those involving the stomach or intestines.

Neurological disorders: Conditions such as Parkinson's disease or multiple sclerosis can affect the nerves that regulate stomach function, leading to gastroparesis.

Medications: Some medications, such as opioids and certain antidepressants, can slow down stomach emptying and contribute to the development of gastroparesis.

Idiopathic: In some cases, the cause of gastroparesis may be unknown, and it is referred to as idiopathic gastroparesis.

Treatment Options for Gastroparesis:

The management of gastroparesis focuses on alleviating symptoms, improving stomach emptying, and addressing any underlying causes. Treatment options may include:

Dietary modifications: Eating smaller, more frequent meals low in fat and fibere can help ease symptoms of gastroparesis. Chewing food thoroughly and avoiding carbonated beverages may also be beneficial.

Medications: Several medications can be prescribed to help stimulate stomach contractions and improve gastric emptying. These may include prokinetic agents such as metoclopramide or domperidone, as well as antiemetics to control nausea and vomiting.

Botulinum toxin injections: In some cases, injecting botulinum toxin directly into the pyloric sphincter (the muscle that controls the passage of food from the stomach to the small intestine) can help relax the muscle and improve stomach emptying.

Gastric electrical stimulation: This treatment involves implanting a device similar to a pacemaker in the abdomen to deliver electrical impulses to the stomach, which can help regulate gastric motility and reduce symptoms.

Surgical interventions: In severe cases of gastroparesis that do not respond to other treatments, surgical options such as gastric bypass or pyloroplasty (widening of the pyloric sphincter) may be considered.

Gastroparesis is a chronic gastrointestinal disorder that can significantly impact an individual's quality of life. While there is no cure for gastroparesis, various treatment options are available to help manage symptoms and improve stomach function. By working closely with healthcare providers and making lifestyle modifications, individuals with gastroparesis can effectively manage their condition and experience improved quality of life.

One person who is fighting back against Gastroparesis is Eleanor 'Ellie' Dyson. Gastric electrical stimulation would be of benefit to Ellie, but there is no NHS funding available for such a device. 

A friend suggested to Ellie that she should start a Gofundme appeal and after giving this some consideration, that was what she decided to do.

Her statement on the site says: "My name is Ellie ( Eleanor ) and I have a condition called Gastroparesis. It’s not very well known and is a life limiting chronic illness. I am sick, in pain and very weak on a daily basis. Currently I am tube fed through my abdomen but this is not a complete solution. A gastric pacemaker could really help my condition and prevent me from being hospitalised regularly. I’ve had this condition for 10 years and my children have grown up seeing me in and out of hospital. I feel I have been treated horribly in hospital in the past few years, because people don’t understand the condition."

If you would like to make a donation to Ellie's appeal, here is the link:- https://gofund.me/fe954baa

Incidentally, August is Gastroparesis Awareness Month and you can learn more from the GUTS UK charity https://gutscharity.org.uk