Supporting Loved Ones with Gastroparesis: A Guide to Compassionate Care

Living with gastroparesis can be challenging, not just for the person directly affected but also for their family and friends. It's a condition that disrupts the normal movement of muscles in the stomach, making it difficult to digest food properly. 

As a result, those with gastroparesis often experience symptoms such as nausea, vomiting, bloating, and abdominal pain, which can significantly impact their quality of life. If someone close to you is living with gastroparesis, there are several ways you can offer support and help them navigate through this difficult time.

Educate Yourself: Take the time to learn about gastroparesis. Understanding the condition, its symptoms, and its treatment options can help you provide better support to your loved one. There are plenty of reliable resources available online, as well as support groups where you can connect with others who are also supporting someone with gastroparesis.

Be Empathetic: Living with a chronic illness like gastroparesis can be emotionally and physically draining. Be there for your loved one and offer a listening ear without judgment. Let them know that you understand that their symptoms are real and that you're there to support them through the ups and downs.

Offer Practical Help: Gastroparesis can make everyday tasks challenging. Offer practical assistance such as preparing meals that are easy to digest, running errands, or helping with household chores. Even small gestures can make a big difference in easing the burden on your loved one.

Be Flexible and Understanding: Gastroparesis symptoms can be unpredictable, and your loved one may need to cancel plans or change them at the last minute due to flare-ups. Be understanding and flexible, and let them know that it's okay to prioritize their health and well-being.

Encourage Self-Care: Encourage your loved one to prioritise self-care and listen to their body. This may include getting enough rest, staying hydrated, and avoiding trigger foods. Offer to accompany them on gentle walks or other activities that they enjoy and that won't exacerbate their symptoms.

Advocate for Them: Help your loved one advocate for themselves by accompanying them to medical appointments, taking notes, and asking questions on their behalf. Sometimes, having a supportive advocate can make all the difference in ensuring that they receive the care and support they need.

Stay Positive and Offer Hope: Living with gastroparesis can feel overwhelming at times, but staying positive and offering hope can make a world of difference. Remind your loved one that they're not alone in this journey and that there are treatment options available that can help manage their symptoms and improve their quality of life.

In conclusion, supporting a family member or friend with gastroparesis requires patience, empathy, and understanding. By educating yourself about the condition, offering practical help, and being a source of emotional support, you can make a meaningful difference in their lives. Together, we can help our loved ones with gastroparesis navigate through the challenges they face and live their lives to the fullest.

We hope these resources will be of help to you:-

https://www.mayoclinic.org/diseases-conditions/gastroparesis/symptoms-causes/syc-20355787

https://www.niddk.nih.gov/health-information/digestive-diseases/gastroparesis/symptoms-causes

https://badgut.org/information-centre/a-z-digestive-topics/gastroparesis

https://gutscharity.org.uk/advice-and-information/conditions/gastroparesis

https://rarediseases.org/rare-diseases/gastroparesis

https://familydoctor.org/condition/gastroparesis

https://www.enterramedical.com/?gad_source=1&gclid=CjwKCAjw88yxBhBWEiwA7cm6pZf1QglnUmgNOm7FruXqjd77lqAZpeWsqGTyTw1fJUimaOJ0S8I6CRoCRd0QAvD_BwE

https://gut.bmj.com/content/68/12/2238

Understanding Gastroparesis: Symptoms, Causes, and Treatment Options. And how you can help

Imagine not being able to eat any food at all due to a devastating digestive condition?

This is the problem faced by many people who suffer from a poorly understood condition known as Gastroparesis.

What is Gastroparesis? It is a gastrointestinal disorder characterised by delayed emptying of the stomach contents into the small intestine without any apparent obstruction. This condition can significantly impact an individual's quality of life, causing symptoms such as nausea, vomiting, bloating, and abdominal pain. Understanding the causes and available treatment options for gastroparesis is crucial for effectively managing this condition.

Symptoms of Gastroparesis:

Gastroparesis presents with a range of symptoms, which may vary in severity from person to person. Common symptoms include:

Nausea and vomiting: Individuals with gastroparesis often experience persistent nausea and may vomit undigested food, especially after meals.

Bloating: The delayed emptying of the stomach can lead to a sensation of fullness and bloating, even after consuming small amounts of food.

Abdominal pain or discomfort: Some individuals may experience abdominal pain or discomfort, which can be intermittent or persistent.

Heartburn or acid reflux: Gastroparesis can exacerbate symptoms of gastroesophageal reflux disease (GERD), leading to heartburn or acid reflux.

Changes in blood sugar levels: Gastroparesis can interfere with the normal absorption of nutrients, leading to fluctuations in blood sugar levels, particularly in individuals with diabetes.

Causes of Gastroparesis:

Several factors can contribute to the development of gastroparesis, including:

Diabetes: Diabetic gastroparesis is the most common form of the condition and is thought to result from damage to the nerves that control stomach contractions due to high blood sugar levels over time.

Post-surgical complications: Gastroparesis can occur as a complication of certain abdominal surgeries, particularly those involving the stomach or intestines.

Neurological disorders: Conditions such as Parkinson's disease or multiple sclerosis can affect the nerves that regulate stomach function, leading to gastroparesis.

Medications: Some medications, such as opioids and certain antidepressants, can slow down stomach emptying and contribute to the development of gastroparesis.

Idiopathic: In some cases, the cause of gastroparesis may be unknown, and it is referred to as idiopathic gastroparesis.

Treatment Options for Gastroparesis:

The management of gastroparesis focuses on alleviating symptoms, improving stomach emptying, and addressing any underlying causes. Treatment options may include:

Dietary modifications: Eating smaller, more frequent meals low in fat and fibere can help ease symptoms of gastroparesis. Chewing food thoroughly and avoiding carbonated beverages may also be beneficial.

Medications: Several medications can be prescribed to help stimulate stomach contractions and improve gastric emptying. These may include prokinetic agents such as metoclopramide or domperidone, as well as antiemetics to control nausea and vomiting.

Botulinum toxin injections: In some cases, injecting botulinum toxin directly into the pyloric sphincter (the muscle that controls the passage of food from the stomach to the small intestine) can help relax the muscle and improve stomach emptying.

Gastric electrical stimulation: This treatment involves implanting a device similar to a pacemaker in the abdomen to deliver electrical impulses to the stomach, which can help regulate gastric motility and reduce symptoms.

Surgical interventions: In severe cases of gastroparesis that do not respond to other treatments, surgical options such as gastric bypass or pyloroplasty (widening of the pyloric sphincter) may be considered.

Gastroparesis is a chronic gastrointestinal disorder that can significantly impact an individual's quality of life. While there is no cure for gastroparesis, various treatment options are available to help manage symptoms and improve stomach function. By working closely with healthcare providers and making lifestyle modifications, individuals with gastroparesis can effectively manage their condition and experience improved quality of life.

One person who is fighting back against Gastroparesis is Eleanor 'Ellie' Dyson. Gastric electrical stimulation would be of benefit to Ellie, but there is no NHS funding available for such a device. 

A friend suggested to Ellie that she should start a Gofundme appeal and after giving this some consideration, that was what she decided to do.

Her statement on the site says: "My name is Ellie ( Eleanor ) and I have a condition called Gastroparesis. It’s not very well known and is a life limiting chronic illness. I am sick, in pain and very weak on a daily basis. Currently I am tube fed through my abdomen but this is not a complete solution. A gastric pacemaker could really help my condition and prevent me from being hospitalised regularly. I’ve had this condition for 10 years and my children have grown up seeing me in and out of hospital. I feel I have been treated horribly in hospital in the past few years, because people don’t understand the condition."

If you would like to make a donation to Ellie's appeal, here is the link:- https://gofund.me/fe954baa

Incidentally, August is Gastroparesis Awareness Month and you can learn more from the GUTS UK charity https://gutscharity.org.uk