Understanding Sjögren’s Syndrome: A Hidden but Life-Changing Autoimmune Condition

What Is Sjögren’s Syndrome?

Sjögren’s Syndrome (pronounced “SHOW-grins”) is a chronic autoimmune disorder in which the body’s immune system mistakenly attacks its own moisture-producing glands. 

It primarily affects the salivary and tear glands, leading to persistent dry eyes and dry mouth, but it can also involve other organs such as the lungs, kidneys, joints, skin, and nerves.

Named after the Swedish ophthalmologist Henrik Sjögren, who first described the condition in the 1930s, this syndrome is still under-recognised today, despite affecting an estimated half a million people in the UK.

Primary vs Secondary Sjögren’s

Primary Sjögren’s Syndrome occurs on its own, without the presence of another autoimmune condition.

Secondary Sjögren’s Syndrome develops alongside another autoimmune disease, such as rheumatoid arthritis or lupus.

Symptoms to Watch Out For

Sjögren’s Syndrome can affect people in very different ways, but the most common symptoms include:

Dry eyes (burning, gritty sensation, redness, blurred vision)

Dry mouth (difficulty swallowing, frequent thirst, dental issues)

Fatigue – often severe and chronic

Joint pain or swelling

Vaginal dryness

Dry skin or chronic cough

Swollen salivary glands

Peripheral neuropathy – numbness or tingling in hands and feet

Because many of these symptoms overlap with other conditions, Sjögren’s is often misdiagnosed or dismissed, particularly in women, who make up 90% of diagnosed cases.

Who’s at Risk?

Most commonly affects women over 40, although it can occur at any age

Family history of autoimmune diseases may increase risk

People with existing autoimmune conditions like lupus or rheumatoid arthritis are more likely to develop it as a secondary syndrome

Diagnosing Sjögren’s

Diagnosis can be challenging and often delayed. Typical tests include:

Blood tests (checking for ANA, SSA/Ro, and SSB/La antibodies)

Schirmer’s test to measure tear production

Salivary gland biopsy

Imaging like sialography or ultrasound of the salivary glands

A rheumatologist usually oversees diagnosis and treatment.

Living with Sjögren’s Syndrome

Although there is no cure, many people manage symptoms successfully with a combination of:

Artificial tears and saliva substitutes

Immunosuppressive medications (such as hydroxychloroquine)

Good oral hygiene and regular dental care

Moisturisers for skin and vaginal dryness

Pacing and rest for fatigue

Support groups and mental health care for emotional wellbeing

A multidisciplinary approach is essential, as the syndrome can affect many different systems.

Impact on Daily Life

Sjögren’s can significantly affect quality of life. Chronic dryness, fatigue, and joint pain may make it hard to work full-time, enjoy social activities, or maintain energy levels. Yet because it’s often an “invisible illness,” sufferers may feel misunderstood or dismissed.

Raising awareness is vital to improving early diagnosis, reducing stigma, and offering better support.

UK Resources for Support

Sjögren’s Syndrome UK (SSUK): www.sjogrenssyndromesupport.org.uk Offers support, information, and community forums.

Versus Arthritis – For those with secondary Sjögren’s.

The British Sjögren’s Syndrome Association (BSSA): Provides leaflets, webinars, and advice on living with the condition. https://sjogrensuk.org

NHS.uk – For general medical guidance and referrals.

Sjögren’s Syndrome is more than just a case of dry eyes or mouth, it’s a complex, systemic condition that can affect every aspect of a person’s life. By spreading awareness and encouraging those experiencing persistent symptoms to seek help, we can bring this under-recognised condition out of the shadows and into the spotlight where it belongs.

What foods and supplements might help people with Sjögren’s Syndrome?

1. Omega-3 Rich Foods

Omega-3 fatty acids have anti-inflammatory properties which may help relieve dry eye symptoms and joint pain.

Fatty fish (salmon, mackerel, sardines)

Chia seeds

Flaxseeds

Walnuts

2. Hydrating Fruits and Vegetables

These support hydration and provide antioxidants.

Cucumber, celery, and lettuce

Watermelon and oranges

Berries (rich in vitamin C and polyphenols)

3. Anti-Inflammatory Foods

Reducing systemic inflammation may help with fatigue and joint discomfort.

Extra virgin olive oil

Tomatoes

Leafy greens (spinach, kale)

Turmeric and ginger (used in cooking or tea)

4. Soft, Moist Foods

These are easier to swallow and gentler on a dry mouth.

Soups and stews

Yoghurts and smoothies

Mashed vegetables or soft fruits

Supplements Worth Considering

1. Omega-3 Fatty Acids

Supplements such as fish oil or flaxseed oil may reduce eye dryness and inflammation. Always choose high-quality, mercury-free options.

2. Vitamin D

Many people with autoimmune conditions are deficient in vitamin D. Supplementation may support immune balance and reduce fatigue.

3. Vitamin C

Supports salivary gland function and overall immune health. Can be taken as a supplement or via diet.

4. Evening Primrose Oil or Borage Oil

Rich in gamma-linolenic acid (GLA), these oils may help ease dryness and joint pain.

5. Probiotics

May support gut health and immune regulation, especially if the patient is also taking immunosuppressants.

Things to Avoid

Alcohol and caffeine – both can worsen dryness

Sugary and acidic foods – may aggravate dental issues common in Sjögren’s

Ultra-processed foods – may increase inflammation

Conclusion

While no specific diet cures Sjögren’s Syndrome, a nutrient-rich, anti-inflammatory eating plan alongside targeted supplements may significantly improve symptom management. It’s vital to consult a GP, dietitian, or rheumatologist before starting new supplements, particularly when other medications are involved.

A Call to Manufacturers: Ensuring Packaging Accessibility for People with Arthritis and Other Conditions

Image courtesy Clker-Free-Vector-Images Pixabay

The genesis of this blogpost? I was opening a ridiculously wide jar of drinking chocolate when my arthritic thumb went into spasm and I then had to spend the best part of an hour cleaning up chocolate powder in the middle of the night in our kitchen. 

And I thought "Why don't they design jars and bottles for people with arthritis?" And then I thought: "I'll write a blogpost about this!"

 

For millions of people, the act of opening a food jar, a supplement bottle, or even a blister pack of medicine is something done without a second thought. 

But for those living with arthritis, joint pain, reduced grip strength, or other physical conditions, this simple task can be a frustrating, painful, and even impossible challenge.

It’s high time that manufacturers in the food, supplement, and pharmaceutical industries make accessibility a priority when designing their packaging.

The Everyday Struggle of Difficult Packaging

Imagine needing to take your medication but being unable to access it because the packaging is too stiff or fiddly. For individuals with arthritis, limited mobility, or neurological conditions, this isn't just an inconvenience—it's a real barrier to maintaining their health and independence. 

According to the Arthritis Foundation, millions of people in the UK alone live with arthritis or related conditions that affect their hands and joints, making it difficult to perform everyday tasks like twisting off a jar lid or pushing a tablet out of a blister pack.

It's not just arthritis sufferers who struggle with packaging. Older adults, those with disabilities, or even people recovering from injuries can also find modern packaging designs nearly impossible to handle. The issue isn't limited to medication either—food items, dietary supplements, and everyday household products are often packaged in a way that assumes everyone has the same level of physical ability. The reality is that we live in a world where one-size-fits-all solutions simply don’t work.

Why Accessible Packaging Matters

The consequences of inaccessible packaging can go beyond mere inconvenience:

Health Risks: If people cannot open their medication packaging promptly, they may miss doses or take incorrect amounts, which could exacerbate their condition. In an emergency, inaccessible packaging could have serious consequences.

Nutritional Impact: Struggling to open jars, cans, or containers of food can discourage individuals from choosing nutritious options, pushing them towards easier but often less healthy alternatives.

Psychological Toll: Being unable to perform simple tasks like opening a bottle can have a negative impact on self-esteem and independence, especially for older adults who may already be feeling vulnerable.

What Needs to Change: A Call to Action for Manufacturers

It's time for manufacturers to put accessibility at the forefront of their packaging design. Here are some practical solutions that can make a world of difference:

Ergonomically Designed Lids and Caps: Replace hard-to-grip, twist-off lids with options that require less force to open. Consider implementing features like larger grips, flip-tops, or squeeze mechanisms that are easier for those with limited hand strength.

Easy-Open Seals: Many jars and containers have seals that require considerable force to break. Instead, manufacturers could use pull-tab designs that are easier to grasp and tear, similar to how some soup cans now include pull tabs instead of traditional can openers.

Blister Pack Innovations: Medicine blister packs often require significant force to push out a tablet. Including perforations or textured surfaces that aid grip, or creating pull-out pouches, could simplify this process.

Clear Labelling for Accessibility: Packaging should include clear instructions that are easy to read, with contrasting colours for those with vision impairments. Including tactile cues, such as raised symbols, can also help those with limited vision.

User Testing with Diverse Groups: Involving people with arthritis, reduced mobility, or other conditions in the testing phase can lead to designs that truly work for everyone. Collecting feedback from real users ensures that manufacturers understand the practical challenges faced by their consumers.

The Business Case for Inclusive Packaging

While it’s clear that accessibility is an ethical imperative, it’s also a smart business move. The population is ageing, and people are living longer with chronic conditions. By 2030, nearly a quarter of the UK’s population will be over 65, with many experiencing conditions like arthritis. Brands that prioritise accessible packaging can tap into this significant market, enhancing their reputation and loyalty among older adults, caregivers, and those with disabilities.

Additionally, inclusive packaging design is not just good for individuals with specific conditions—it benefits everyone. Who hasn’t struggled to open a stubborn jar or bottle at some point? When packaging is easier to open, it’s a win for consumers of all ages and abilities.

Conclusion: Making Accessibility the New Norm

The ability to open a jar of food, access a vitamin supplement, or take necessary medication should not be a privilege reserved for those with full physical strength. It’s time for manufacturers to recognise the diverse needs of their consumers and design packaging that is truly accessible.

By making these changes, companies can demonstrate a genuine commitment to inclusivity, enhance customer satisfaction, and ultimately make their products more appealing to a broader market. Let’s call on manufacturers to put people first and design packaging that empowers everyone to live independently and healthily. The future should be one where no one is left struggling with packaging that puts barriers between them and their wellbeing.

Now is the time for manufacturers to step up—because accessibility is not just an option; it’s a responsibility.

Nourishing Solutions: Foods That Can Help Fight Rheumatoid Arthritis

Living with rheumatoid arthritis (RA) can be very challenging, as it often brings discomfort and pain that affects everyday life. 

While medications and therapies are commonly used to manage symptoms, there is growing evidence that suggests certain foods can also play a role in alleviating inflammation and supporting joint health for individuals with RA 

In this post we'll explore some of the foods that have shown promise in helping to combat the symptoms of rheumatoid arthritis.

Fatty Fish:

Fatty fish like salmon, mackerel, trout, and sardines are rich in omega-3 fatty acids, which have powerful anti-inflammatory properties. These fatty acids can help reduce inflammation in the body, which is beneficial for individuals with rheumatoid arthritis. Studies have shown that consuming omega-3 fatty acids regularly can help decrease joint pain and stiffness associated with RA.

Turmeric:

Turmeric is a spice that contains a compound called curcumin, which has potent anti-inflammatory and antioxidant properties. Incorporating turmeric into your diet, either by adding it to dishes or taking it as a supplement, may help reduce inflammation and alleviate symptoms of rheumatoid arthritis. Some research suggests that curcumin can inhibit the activity of certain enzymes involved in inflammation, making it a promising natural remedy for RA.

Berries:

Berries such as strawberries, blueberries, raspberries, and blackberries are packed with antioxidants, which can help neutralise free radicals and reduce inflammation in the body. These fruits also contain flavonoids, which have been shown to have anti-inflammatory effects. Adding a variety of berries to your diet can provide a delicious and nutritious way to help manage symptoms of rheumatoid arthritis.

Olive Oil:

Olive oil is a staple of the Mediterranean diet, which is known for its anti-inflammatory properties. It contains oleocanthal, a compound that has been shown to have similar effects to nonsteroidal anti-inflammatory drugs (NSAIDs) in reducing inflammation. Incorporating olive oil into your cooking or using it as a salad dressing can be a flavorful way to help combat inflammation associated with rheumatoid arthritis.

Leafy Greens:

Leafy greens such as spinach, kale, and Swiss chard are rich in vitamins, minerals, and antioxidants that can help support overall health and reduce inflammation in the body. These vegetables are also high in fiber, which can aid in digestion and promote gut health. Adding more leafy greens to your diet can provide numerous benefits for individuals living with rheumatoid arthritis.

Ginger:

Ginger is another spice with potent anti-inflammatory properties that may help alleviate symptoms of rheumatoid arthritis. Studies have shown that ginger extract can help reduce pain and stiffness in individuals with osteoarthritis and RA. Adding fresh ginger to your meals or drinking ginger tea regularly can be an effective way to incorporate this powerful spice into your diet.

Conclusion:

While there's as yet no cure for rheumatoid arthritis, making dietary changes and incorporating anti-inflammatory foods into your meals can help manage symptoms and improve overall quality of life. By including foods such as fatty fish, turmeric, berries, olive oil, leafy greens, and ginger in your diet, you can provide your body with the nutrients it needs to support joint health and reduce inflammation. 

As always, it's essential to consult with a healthcare professional before making any significant changes to your diet, especially if you have a medical condition like rheumatoid arthritis. With the right combination of medication, therapy, and nutrition, individuals with RA can work towards managing their symptoms and living a healthier, more comfortable life.